Genetic Alliance South Africa (GA-SA) is a non-profit, membership organisation uniting patient support groups, healthcare professionals and other stakeholders relevant to the care and prevention of congenital disorders (CDs). GA-SA is both a registered Non Profit Organisation (NPO# 001-029) and a Public Benefit Organisation (PBO# 930060116).
A united congenital disorders (CDs) community that works towards a South Africa where those affected by CDs can readily access care and support.
To unite, support and build capacity in the CD community through advocacy, networking, education, public awareness and research.
Aims and objectives:
- Education and capacity building
Education and increase awareness of CDs among stakeholders to improve diagnosis and care and increase knowledge, skills and competencies of CD civil society.
- Advocacy and lobbying
Unite the CD community and lobby for the improvement and funding of CD related services.
Increase the body of evidence used to advocate for CDs, including the development of robust patient registries.