My goal is to raise awareness of Ehlers Danlos Syndrome (EDS) and create a community where people can share their pain, talk openly about their disease and connect with people.
Conditions supported: Ehlers Danlos Syndrome and chronic pain related syndromes
Number of members: 20,000 and growing
Contact person: Corne Roux
Address: Dio Volente Number 4, Kanonkop Street, Bloemhof, Cape Town, 7530, Western Cape, South Africa