Aims to provide accurate information about Von Hippel-Lindau (VHL) to medical/health professionals, support services and programmes to individuals with VHL and their families, agencies, groups and to the general public. Advises on genetic testing, patient and caretaker support, distributes literature about VHL and building of family histories.
Conditions supported: Von Hippel-Lindau(VHL)
Number of members: Unknown
Contact person: Markus Jansen van Vuuren
Email: firstname.lastname@example.org| Call: (082) 779-5019
Address: 4 High Street, Strubenvale, Springs, Gauteng 1559, South Africa