You want to start a support group
First Thoughts: Stop and think hard. Do you really want to start a group? Presumably you have highlighted the need for such a group from your own personal experience in caring for a child with special needs.
Although the idea of getting parents together sounds quite simple it does require thinking, planning and organising. It will also mean demands on your time and energy and those of your family. Listening to other people’s problems can be emotionally draining. As group leader you may find yourself in the key supporting role, at least until the membership has built up in numbers and delegation becomes a possibility.
You need not face these decisions alone. GA-SA has genetic counsellors who can guide you through these early days and offer support and advice as needed. They can also put you in touch with other parents who have trodden the same path and will share their experiences with you, both good and bad.