An important role of Genetic Alliance South Africa (GA-SA) will be to assist with collaborations and guiding research with regards to congenital disorders.
One of the first major focuses will be on ensuring that South Africa has a clear idea of how many individuals are affected by congenital disorders. This will aid in lobbying to government and helping to determine what services and resources are allocated to aiding those affected with congenital disorders, together with assisting with prevention policies. It will also be important to know what individuals affected by congenital disorders feel their needs are in terms of services and resources.
GA-SA would like to assist support groups with their research interests by collaborating and putting the support groups in contact with potential researchers who have a special interest in congenital disorders.