Useful links
Webinars & podcasts:
- RDSA Webinar Wednesday: Terminal illness? What to consider…(June 2019)
- RDSA Webinar Wednesday: Ehlers Danlos Syndrome (June 2019)
- RDSA Webinar Wednesday: Rare Assist: Getting the most from your medical aid (February 2019)
- RDSA Webinar Wednesday: Are you battling to cope? Compassion fatigue webinar with Kim Ballantine (November 2018)
- RDSA: How to run a successful fundraiser (September 2018)
Palliative Care:
- Hospice Palliative Care Association of South Africa (HPCA)
- International Children’s Palliative Care Network (ICPCN)
- Palliative Treatment for Children (Patch) SA
Societies & Professional Bodies:
- African Society of Human Genetics
- Health Professions Council of South Africa (HPCSA)
- Public Health Association of South Africa (PHASA)
- Southern African Society for Human for Human Genetics (SASHG)
Learning materials:
- National Bettercare Home Learning Programme
- National Special Needs Education Centres
- Biotechnology – Genetic Conditions
International links:
- Drugwatch (Zofran & Zuplenz; Lexapro)
- EuroGenTest
- Genetic Alliance
- Genetic Alliance Australia
- Genetic Alliance UK
- IBIS
- International Genetic Alliance
- March of DimesNational birth defects prevention network
- National organization of rare diseases
- Office of Rare Disease Research
- Rare Diseases Europe (EURORDIS)
- Rare Disease UK
- SWAN UK
- Undiagnosed Diseases Network International
CONTACT US
Phone
+27 (0)83 399 4353
+27 (0)83 399 4353
Email
info@geneticalliance.org.za
Ask a genetic nurse
queries@geneticalliance.org.za
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